Aboriginal and Torres Strait Islander
Aboriginal Carers Support
First Peoples Disability Network
First People Disability Network Australia (FPDN) is a national organisation of and for Australia’s First Peoples with disability, their families and communities.
Indigenous Disability Advocacy Service
The Indigenous Disability Advocacy Service [IDAS] can assist Indigenous people with most types of disability, their families and carers when the person they are looking after needs help, especially if they have been unfairly treated or are confused about a big decision. For more information about IDAS you can call them on 02 4722 3524.
Disability Advocacy NSW
Disability Advocacy (DA) is a program of Advocacy Law Alliance Inc.
Mental Health Carer Advocacy Network (MHCAN)
MHCAN is a free service being developed by MHCN that will provide carers, families, kinship groups, and sector members who sign up to Network database with a centralised carer lived experience hub. See the website for more information and to join: https://www.mentalhealthcarersnsw.org/advocacynetwork/
People with Disability (PWD)
A service for people with a disability who live in NSW. Family members, carers, disability workers and others can also ask to help a person with disability. Contact by phone on Monday to Friday between 1pm and 4:30pm. Telephone (02) 9370 3100 1800 422 015 When you call, ask for the Intake Officer.
Multicultural Disability Advocacy Association
Telephone: (02) 9891 6400 Toll free 1800 629 072
Physical Disability Council of NSW
Telephone: 1800 688 831
Family Advocacy NSW is an independent, community based social advocacy organisation which works across New South Wales Australia. They provide training and support for families to speak up for opportunities for people with a disability. Contact on 02 9869 0866 or freecall 1800 620 588 for non-metropolitan NSW callers only
Culturally and Linguistically Diverse (CALD)
Promoting multiculturalism, ethnic affairs, cultural diversity, community unity and harmony in one of the most culturally diverse States of the world, New South Wales, Australia
Telephone: (02) 8255 6767
Multilingual Disability Hub
On this website, you will find relevant and accessible information on disability and the National Disability Insurance Scheme (NDIS) in your language.
List of Community Organisations in NSW
Multicultural Disability Advocacy Association
Telephone: 1800 629 072
Multicultural Health Communication Service NSW
Telephone: (02) 9816 0347
Carer and Parent Support
Cerebral Palsy Group
The Cerebral Palsy Group provide FREE support and useful resources to individuals and families who have been diagnosed with cerebral palsy.
Link: Cerebral Palsy Group
National Disability Insurance Scheme (NDIS)
NSW Government Information for Carers
NSW Health Specialised Intellectual Disability Health Team
A clinical service for children, adolescents or adults with intellectual disability with complex health conditions and a current unresolved health problem, and health care needs that cannot be met by usual care. For eligible clients with a GP referral they offer a multidisciplinary health assessment; a Health Care Plan with recommendations; and referrals to health and other services as needed.
Physical Disability Council NSW
Complaints about Services
NSW Ageing and Disability Abuse Hotline
If you suspect vulnerable persons are experiencing abuse or neglect, you can call 1800 628 221.
NSW Ombudsman, Community and Disability Services
Telephone: 02 9286 1000 or 1800 451 524 (regional/charges may apply on mobile phones)
Health Care Complaints Commission
For complaints about health services.
Telephone: 1800 043 159
Complaints Info Line
Human Rights and Equal Opportunity Commission (HREOC).
Telephone: 1300 656 419
Anti-Discrimination Board of NSW
Telephone: 1800 670 812
Connection and Community
NDIS Grass Roots Discussion Group
A group for people with disabilities, family members and supporters to discuss the National Disability Insurance Scheme (NDIS) and what we need from it to live full lives.
Parent discussion forum
Forum for parents of children with a disability.
My Time parent support group
The website offers tips and info for parents with children under 16 years of age.
The Parent and Carer Resource Centre
The Sydney Childrens Hospital Network has a centre designed by parents for parents. It provides a non-clinical, homely environment where parents and carers can take a break.
Carer Support Groups
Accessible Arts NSW
Accessible Arts is the peak arts and disability organisation across New South Wales. Accessible Arts promotes and provides opportunities for people with disabilities to participate in arts and cultural activities either as audience members; through attending galleries, theatres, museums and festivals; or as participants in art, drama, music, dance and multimedia activities; and by developing as professional artists.
Parents for Inclusion
All Means All is the Australian Alliance for Inclusive Education, a nationwide multi-stakeholder alliance of people and organisations working together to implement an inclusive education system and remove the legal, structural and attitudinal barriers that limit the rights of some students, including many students with disability, to access full inclusive education in regular classrooms in Australian schools.
Lifeline is a national charity providing all Australians experiencing a personal crisis with access to 24 hour crisis support and suicide prevention services.
Telephone: 13 11 14
Interrelate Family Centre
A family relationship service for carers provides mediation and counselling to assist families to:
– make decisions about the future care arrangements for their family member with a disability
– resolve conflicts that may arise within the family in relation to the future care needs with the assistance of an accredited mediator
– discuss the concerns and issues around family relationships and the care of a family member with disability through general counselling sessions.
Telephone: 1800115237 or 1300 736 966
Parent Line NSW
Parent Line is a telephone help line for parents and carers of children aged 0-18 years in New South Wales. They provide free support, information, referral and counselling.
Telephone: 1300 1300 52
A unique program for adults and school-leavers with disabilities, offering community access, sensory, fine-motor, art and craft, music and physical movement activities. All Greystanes staff have ongoing training and are trained in Person Centred Active Support.
NSW Council for Intellectual Disability (NCID): Diagnosis and Assessment Factsheet
The NSW Council for Intellectual Disability has compiled factsheets for the various life stages around people with intellectual disability. The link below takes you to a factsheet for Diagnosis and Assessment of disability. Included is a list of early intervention services sorted by region.
Activ – Parent Portal Timeline
The homepage of this website has a life-events timeline with links to support and info that may be helpful at various points of your child’s development, from diagnosis, through early childhood and adolescence to leaving school and so on.
Lapstone Preschool, Nepean Lifestart
Telephone: (02) 9623 2100
Macquarie University Special Education Centre
Telephone: (02) 9850 8691
Education and Schooling
Department of Education and Training
A website with extremely useful information for parents and carers of children with disabilities starting school.
Getting ready for school
Information about services for students with disabilities in NSW Public Schools is contained in the publication.
Assistive Technology Australia
Assistive Technology Australia (previously, Independent Living Centre NSW) is a leading information, education, and advisory centre for Assistive Technology and the Built Environment. They provide impartial advice, information and leadership that builds capacity. Link: at-aust.org/
NDIS Registered. Arjo is a supplier of medical devices, services and solutions for people with reduced mobility and age-related health challenges. Link: www.arjo.com/en-au/products
NDIS Registered online retailer of mobility, safety and accessibility products. Link: https://www.breezemobility.com.au/
Hospital at Home
Telephone: 1300 303 604
Safety and Mobility equipment
Connect Child and Family Services
Telephone: (02) 4758 9966
Barnardos Penrith Centre Family Support Program
Programs operating from the Penrith centre include: Crises Intake Service; Family Support; Temporary Foster Care; Family Semi Supported Accommodation; Respite and Vacation Care for children with disabilities; Youth Services. WAGS started in 1991 providing services aimed to directly assist families where children have a disability. Group activities for adolescents with a disability (TEEPS and TASS) have been developed and they offer recreational activities and individual respite. Contact (02) 4729 1211
University of New South Wales – Intensive Family Support Program Report
Keeping children with a disability safely in their families
Early Links Program Northcott
Support family in accessing appropriate services. Contact Parramatta office: 02 9890 100 or Penrith office: 02 4720 4400.
Resources for Families
“A Place To Call Home: Talking About Devolution” (2010) DVD including electronic Facilitator’s Guide
Greystanes Children’s Home in Leura, NSW was a large residential centre for children and young adults with disabilities and complex health care needs. In the late 1990s, a decision was made to close the institution and support people to live in the community. This is the story of devolution – one of the most important social policy initiatives taking place in modern Australian society.
Introduced by Julie McCrossin (Broadcaster – ABC’s Life Matters, Good News Week), this DVD records the journeys of some of the Greystanes residents, families and staff as they look back on their life-changing experience. Other parents whose adult children still reside in institutions also share their hopes and fears of a future life in the community.
Ms Jan Daisley, a leading advocate for people with disabilities, provides a personal insight into institutional care and her quest to find her own “place to call home”.
“When I was appointed as the CEO in April 2008, Greystanes had been fully devolved for at least two years. So I asked parents of those people now living in the new Community Living Program how they felt back when they were originally told that Greystanes had to close. Overwhelmingly they said they were alarmed, fearful and angry. Many said they were happy with Greystanes at the time, and the prospect of moving their son or daughter into the community raised major concerns for them, concerns about safety, health care, community acceptance, and ongoing security of tenure.
I then asked how they felt about the new Community Living Service and what it provides for their son or daughter, now that Greystanes had closed. Overwhelmingly parents expressed very strong and very positive opinions about how so much better things were, compared to when their son or daughter was in Greystanes.
Their comments included things like the right to live in the community and be fully included, better health care, community access, the dignity of living alongside ordinary neighbours, individualised attention, and privacy and space.
Most significantly, a number of parents said to me: if only I had known back then how much better things could be for my child. If only I had known, it would have saved me so much anguish, and I wouldn’t have had to waste so much energy in trying to fight it.
All of this was so important, and it is the reason I decided to produce the DVD A Place to Call Home –talking about devolution. I thought if I could capture this it would help a lot of parents who currently have their adult sons and daughters in residential institutions. There were important and powerful stories here that needed to be told. I thought it might also help other people who have involvement in large residences, such as front line staff, service providers and of course funding agencies and government.”
– John Le Breton, Greystanes CEO, at the launch of A Place to Call Home, 24 May 2010. To download this speech in its entirety, click here:
DVD can be viewed here.
Katoomba Neighbourhood Centre (KNC) Belong Blue Mountains
The Working Carers Support Gateway
Bureau of Health Information
Family Relationships Online
People With Disability Australia
Children and Young People with Disability Australia (CYDA)
Children and Young People with Disability Australia (CYDA) is the national peak body that represents children and young people (aged 0-25) with disability.
International Day of People with Disability website
Women With Disabilities Australia (WWDA)
National Ethnic Disability Alliance
Disability and Aged Information Service Inc.
Penrith Disabilities Resource Centre
Richmond Community Services Inc.
Kid Needs website
Access, opportunity and acceptance
National Disability Insurance Scheme (NDIS)
Telephone: 1800 800 110
Local Area Coordinators Locations (NDIA)
Communities and Justice NSW Government (Nepean Blue Mountains)
Blue Mountains, 435-437 Great Western Highway Faulconbridge NSW 2776
Telephone: 02 4752 2600
Hawkesbury, Level 1, 300 George Street Windsor NSW 2756
Telephone: 02 4574 6666
Lithgow, 109 Main Street Lithgow NSW 2790
Telephone: 02 6354 0800
Penrith, 2-6 Station Street Penrith NSW 2751
Telephone: 02 4722 7300
St Marys, 225-227 Queen Street St Marys NSW 2760
Telephone: 02 9851 4100
NSW Department of Health
Law Access Telephone: 1300 888 529
Telephone: 02 8688 7777
Healthdirect 24 hour hotline
The Healthdirect Australia service is now available across NSW and provides a 24-hour hotline for people who need health advice. The advice is delivered by highly skilled Registered Nurses who are supported by health triage software, a website and an up-to-date service directory of local facilities. If people have a health concern and are unsure what to do next they can call Healthdirect which will deliver important health information and help people make good choices about where to seek treatment and when. Calls to Healthdirect Australia on landlines are free but mobile charges may apply.
Telephone: 1800 022 222
Health Direct National Directory
Sleep guide for children with Autism Spectrum Disorder
The Continence Promotion Outreach Program
Covers Penrith, Hawkesbury, Blue Mountains. A part time clinical service funded by Home and Community Care (HACC) for all age groups. The Continence Foundation brings this service to your home.
Telephone: (02) 8741 5699
Carer Support Program
Sydney Children’s Hospitals Network provides support to parents and carers at Sydney’s childrens hospitals.
Free step-by-step guidance, caregiving support, and invaluable resources and information on mesothelioma.
Home & Garden Modifications
Home Modification Information Clearing House
Guide to Room-by-Room Repairs for Easy Accessibility
Creating a Wheelchair-Friendly Home: A Complete Guide (US)
Wood Ramp Design: How to Add a Ramp that Looks Good and Works Too
Link: Ramp Booklet
Top 5 things to consider when designing an accessible bathroom for wheelchair users
Creating a Wheelchair-Accessible Backyard For Visitors
Wheelchair Gardening Tip
Building an Accessible Garage
The Parent and Carer Resource Centre
The Centre has been designed by parents for parents. It provides a non-clinical, homely environment where parents and carers can take a break. The Centre is staffed by a team of fantastic volunteers who are dedicated to providing a friendly atmosphere and a listening ear.
Telephone: (02) 9845 0580 or (02) 9845 3590
Blue Mountains District ANZAC Memorial Hospital
Great Western Highway, Katoomba NSW 2780
Telephone: (02) 4784 6500
7 Huntley Grange Road, Springwood NSW
Telephone: (02) 4751 0300
Somerset Street, Kingswood NSW
Telephone: (02) 4734 2000
Hawkesbury District Health Service
cnr Day and Macquarie Streets, Windsor
Telephone: (02) 4560 5555
Corner of Elizabeth and Goulburn Streets, LIVERPOOL NSW 2170
235 Morrison Rd, Putney NSW 2112
Westmead Children’s Hospital
cnr Hawkesbury Road and Hainsworth St, Westmead
Telephone: (02) 9845 0000
cnr Hawkesbury and Darcy Roads, Westmead
Telephone: (02) 9845 5555
Allowah Children’s Hospital
Allowah is a hospital which cares for children and young people up to the age of 16 with physical and intellectual disabilities such as genetic or chromosomal disorders, birth trauma, cerebral palsy, head injuries, and diseases acquired after birth.
Telephone: (02) 9858 4994
Greystanes Home Support Services
Whether you are seeking services under the National Disability Insurance Scheme (NDIS), are a participant with iCARE (Lifetime Care and Support Authority) or are seeking private home support Greystanes provide flexible in-home support to you 24 hours a day, 7 days a week. In the Blue Mountains, Lithgow, Nepean, Hawkesbury and Greater Western Sydney region.
Telephone: 02 4784 1118
Community Justice Centres
CJCs contribute to the safety and harmony of communities by improving individual, group and community responses to, and resolution of, conflict. They provide quality mediation and conflict management services for metropolitan and regional New South Wales. Their services are free, confidential, impartial, accessible and voluntary.
Telephone: 1800 990 777
Elizabeth Evatt Community Legal Centre – Katoomba
Telephone: 4704 0207
Legal Aid – Penrith Office
Telephone: (02) 4732 3077
Intellectual Disability Rights Service (IDRS)
Community legal centre in NSW for people with intellectual disability.
Telephone: 1800 666 611
Disability Discrimination Legal Centre (NSW)
Telephone: 1800 800 708
Aboriginal Legal Service – NSW/ACT (ALS)
A community-controlled organization responsible for providing legal aid services to Aboriginal people in NSW and the ACT. The ALS has approximately 24 offices across NSW and the ACT from which it provides legal advice, referral and casework assistance in the fields of Criminal and Family Law (including Care and Protection). ALS also provides advice on Civil Law matters from some of its offices.
Telephone: (02) 8836 3400
Law Access Online
On this site you will find legal information and assistive services
Libraries (Resources & Toys)
NSW CID Resource Library and Information Line
The NSW Council for Intellectual Disability operates an extensive resource library with information on intellectual disability, and welcomes enquiries from individuals, families, carers and organisations. The info line number is freecall 1800 424 065.
Connect Child and Family Services Inc.
Telephone: (02) 4578 9966
Toy Library Outreach Service
Specialise in providing toys for children with disabilities and high support needs. Featuring switch-adapted, sensory and educational toys, children will delight in making them function through lighting up, playing sounds and movement. Through hands-on play, they can build valuable problem-solving, coordination, reasoning, numeracy, literacy and fine motor skills. A specialised outreach service is available, with the Library Children’s Inclusion Officer providing home visits for families living in the Penrith area or one-on-one borrowing sessions by appointment and opportunities for extended loan periods. Referrals are required to access this service. For details on the referral process for the Toy Library Outreach Service call 0418 664 879.
Family Advocacy Library – Inclusion Collection
Telephone: 1800 620 588
Activ Learning and Discovery Centre
Noah’s Ark WA and Activ Library have merged to create an amazing new service known as Activ Learning and Discovery Centre.
Breakaway runs camps for children and young people with complex disabilities, and they also run camps for their siblings.
Telephone: (02) 4390 7624
Sailors with disABILITIES
Sailors with disABILITIES is committed to changing society’s perception of people with disabilities. Harbour sailing, ocean racing, the youth program and the inshore and coastal training program are just some of the ways of achieving this.
Telephone: (02) 8230 0880
Leisure Options: Accessible travel for all
Leisure Options creates barrier-free local, national and international holidays for people with physical and intellectual disabilities. Holiday packages can be customised to provide a relaxing or exciting time for people with all ranges of abilities from the independent to those requiring 1:1 support. Leisure Options specialises in disability travel and our travellers include those with acquired brain injuries, people requiring a travel companion, the frail or elderly and families in need of respite support.
Sailability Penrith Lakes
Sailability caters for people with a wide range of disabilities and experiences, has support from state sporting authorities and works closely with a variety of disability organisations around Australia, ensuring that people with disabilities have the opportunity to sail in safety.
Auburn Botanical Garden Equal Access Playground
This innovative playground on the corner of Chisholm and Chiswick Roads has three main features linked by a wheelchair accessible pathway: Play structure, Maze, and a Liberty Swing.
Riding for the Disabled Association
Provides people with a disability the opportunity to ride and enjoy all the activities connected with horse riding. Riding for people with a disability is both therapeutic and recreational.
RDA Nepean Centre – (02) 9623 4173
RDA Blue Mountains Centre – (02) 4739 6829
Ski 2 Freedom has an extensive portfolio of information and contacts ensures that beneficiaries achieve barrier-free access to the European mountains. They provide a global and comprehensive guide and tailor our advice and support to meet your specific requirements. Life is about inclusivity, accessibility and health-restoring opportunities.
The website includes links to information about issues that affect young people, and to places where you can get support. There is also an online community forum where you can communicate with others.
Kids Helpline – 1800 55 1800
You can call this number any time you’re feeling stressed and someone will be there to listen. It’s free to call too.
Siblings Australia has just updated their website to include forums for young, teen and adult siblings. Young siblings will need parental consent to access the forums.
Carers Australia Young Carers Project
Check out the room where young carers can chat to each other, play games, get info and resources and find useful links.
Transport and Vehicle Modifications
Community Transport is wheelchair accessible and generally affordable for those who need to access the services. Specialist services will provide transport to shopping, outings, respite and medical appointments. Included in this list are taxi companies with wheelchair accessible vehicles.
If you need to modify your own vehicle we can recommend Freedom Motors Australia who convert most standard vehicles into wheelchair accessible vehicles.
Public Transport Accessibility Information
NSW Transport Infoline
Telephone: 131 500
Great Community Transport
Telephone: (02) 4759 2403
Katoomba-Leura Radio Cabs
For Blue Mountains residents, (02) 4782 1311
Penrith Accessible Transport
0416 157 668
Peppercorn Community Transport
For Hawkesbury residents, (02) 4587 0222
Hawkesbury Richmond Windsor Taxi Service
For Hawkesbury residents, 0416 960 913
Freedom Motors Australia convert most standard vehicles into wheelchair accessible vehicles working with you and/or your occupational therapist to find the best solution for your specific needs.
Link: Freedom Motors Australia